The final report was that Kaelyn is intellectual disabled (ID). ID is the new way of saying mentally retarded. Her IQ scores were very low. Much lower than I had anticipated. I believe that her scores will climb as she acquires more language, but I do not think she will ever lose the label of ID. The school recommends that she be put in full day special education. This was not a surprise. What was a surprise was that she would not get many outside services besides a one on one aide, some O&M services, and thirty minutes a week of speech consult with her teacher. Medical professionals outside of the school recommend occupational therapy and speech therapy. This is why we went to the school. Private OT and speech is expensive. More than we can do on a regular basis. I thought if we put her in school then all of that would be provided.
In the end we declined the IEP with the school. We feel strongly about keeping her home where she continues to learn the security of being in a family. I can provide her everything she needs to grow and learn. I've been working on developing my own IEP for her for next school year. We are going to focus on language development, preschool skills, and music. I'm most excited about enrolling her in our homeschool choir. She loves to sing and I can already see her giant smile as she learns new songs. She will also continue gymnastics at Break the Barriers to strengthen her muscles and develop coordination. Kaelyn and I will also volunteer once a week in my little girls' kindergarten class. This will give her even more of an opportunity to interact with typical developing children.
God has given us so much peace about this decision. I know that He had us go through this IEP process with the school so that we would be confident in our decision to homeschool Kaelyn.
Our next step is to have her genetically tested to see if she has some type of syndrome. We will also have her tested again by a neuropsychologist this next year. We will continue to have her tested so that we may keep track of her progress. I'm positive that she will progress. Even though she will never be independent, she is such a joy to have in our lives!